June Wrap Up & Waitlisted!

Wow June has been a crazy month! At the beginning of the month I started “Lung Rehab”. A program that gets you in shape and educates you on having a lung transplant. Here, I do A LOT of exercise. I get so tired from lung rehab that I haven’t been able to go out much with friends or socialize. Netflix and TV have definitely been a blessing! I’ve started a few new series and finished off some old ones. I’ve also started playing Portal 2 on my brother’s new gaming PC which is a ton of fun. I want to work on the my site/instagram more but I seem to be stuck with what to post! Please let me know if you have any ideas! Be sure to check back soon too as I’m also making a video/commercial type of thing to  share what my site and organization is all about!

First off a little more about lung rehab! It started June 5th and is Monday – Friday from 8:30am to 12pm. The first two hours is working out: biking, weights, and yoga. It’s really nice because I’m being monitored by my physical therapist and get to use high amounts of oxygen making it easier for me to breathe. Doing exercise with lung GVHD is very difficult, the only way I can put it is feeling like I’m constantly underwater, gasping for air. It’s tedious because the exercises are so simple and easy and I could’ve done them in my sleep years ago (when i didn’t have cancer or lung gvhd) so it gets frustrating but I know it’ll be worth it in the end. I’ve also made a few new friends in my group, they’re all quite a bit older than I am. I also love my occupational therapist Martha, she does yoga with me and is one of the nicest people I’ve come by! Also my physical therapist, Josh, is great! Not only is he a physical therapist but he’s also a drummer in the band Our Good Wolf which everyone should really check out! After the workout, we have educational classes. We learn how to prepare for transplant and how to live your life until you get your new lungs. Because I’m so young and my lungs are in such bad shape I got put on the waitlist early which means whenever lungs that match my blood type, tissue type, and size, I could get the call at anytime to go into surgery which is roughly 6-10 hours! I’m anxious, scared and excited but mainly blessed that I could have the possibility of a new, normal life.

https://ourgoodwolf.bandcamp.com

On Netflix I started the new season of Orange is the New Black and finished the first season of #Girlboss. I can’t say I love the whole “riot” thing going on in OITNB but it’s definitely interesting and unpredictable! I also really liked #Girlboss, I read part of the book but the two are completely different! Again, its very different but totally up my alley, I love watching shows based on true life and this show being about a girl starting a business out of nothing is really interesting and definitely worth a watch. I’m also really sad Better Call Saul ended with so many loose ends, and from what I heard I’m not sure if there’ll be another season.. I sure hope there is though. A new season of Ink Master started too on Spike which I just love! But I’m really in need of a new show to binge on so please if you have any suggestions let me know!

I really haven’t made too much of an effort to get my bracelets/organization “out there” but not because I don’t want to, but because I haven’t had time to perfect it! I really want my message and mission to be clear too. I also want to write about stuff I like, review products/places/restaurants, things i’ve experienced and have people get to know me beyond my illness. So please give me time and stay tuned 🙂 Also please share my instagram and website!

Instagram: AngieRoseJJ

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