My JourneyT

Hi everyone! My name is Angie Rose Lee and I am 22 years old. Over the past eleven years (2008) I have had leukemia 3 times, received 2 bone marrow transplants and just recently received a double lung transplant (March 30, 2019)! I have gone through treatment in Canada and the United States at five different hospitals. The road has been long and difficult, but today I am cancer-free and breathing with new lungs!

The purpose for selling my bracelets is to raise funds for the organizations and hospitals that have helped me along the way. I also want to create awareness about bone marrow and organ donation. The more donors we have, the more lives that can be saved. When my cancer returned in 2012, my oncologist told me I would need a bone marrow transplant. The world database was checked and there was no match for me. I had to continue chemotherapy and hope a match would come my way. This is why it is so important to be swabbed as you could be a possible match for someone and save a life. I also want to spread the word about organ donation. I waited for my lung transplant for almost 2 years. There just aren’t enough donors and so many waiting for transplants of all kinds. One donor can save up to 8 lives.

I never once thought this would happen to me. But it did. I was an active, healthy kid, and an outgoing teenager. I loved sports of all kinds – gymnastics, tennis, volleyball, tae kwon doe, and on and on. My friends and I loved the weekends and late summer nights!

I’m grateful for being here but its been a struggle to say the least. I salute all the health care professionals who treated me with kindness and respect. A big thank you to friends who stuck by me and of course.. my family 🙂

On a side note, there are many things I have left out-details about operations, procedures, medicines, feelings/emotions. So much has happened in the past 11 years that it would impossible to cover it all. I’ve kept my story as short as I can so more people can read it without being overloaded with too much information.

I’ve tried to mention the main points of my journey but if anyone has questions for me, is going through a similar experience, or just wants to say hi I am always here to talk or text!

To Read My Full Story by Year, Click the Tabs Above!

On July 1st, 2008 when I should have been enjoying Canada Day, I was instead receiving the worst news one can hear, “You have cancer”. At 11 years old, I was diagnosed with ALL- (Acute Lymphoblastic Leukemia), and would start an experience that would forever change and shape my life.

I began 6 months of chemotherapy followed by a year of pills and endless doctor appointments. Many days and weeks were spent in the hospital for the treatments, and also complications from my weakened immune system. It was such a tough time- losing my hair, joint/muscle pain, mouth sores, eating through a feeding tube and lots of nausea and tiredness. I only attended a few days of 6th grade as I never felt well enough to go.

Before I was diagnosed, I was VERY athletic. Competing in tennis tournaments, an avid swimmer, top tier of my school running team and a National Tae Kwon Do silver medalist. But my love and passion was always for gymnastics. I was awarded Top Amateur Gymnast for my province of Alberta, Canada. I believe to this day that the physical toughness and mental focus of this sport really helped me get through some tough days.

This year I was back in school for grade 7. I was feeling better but often missed from being tired. It was great to see old friends again and it felt like life was getting back to normal!
Because of the steroids I was on for the leukemia protocol I developed a condition called Avascular Necrosis of the knees. This is where the blood supply is cut off to a certain area and the bone eventually dies. I was told that I would eventually need knee replacement surgery. This is a very painful condition. Also my physical strength was lacking and unfortunately I didn’t make any of the school teams I tried out for. Maybe next year!

Grade 8 was the best year of my life. My body had completely healed, I was in great shape from the volleyball camps I attended over the summer and I was surrounded by tons of new friends. Not only did I make first string on my school team, but I was also accepted into one of our city’s top volleyball clubs! I started gymnastics again and after a few classes was invited to join the competitive tramp and tumbling team! I felt invincible, as if the cancer had never even happened. My oncology checkups and hospital visits were now months apart. I was totally myself again and in control of my life. I would cherish the memories from this year dearly through the dark times that lay ahead.

This year was special because I fulfilled my “Make-A-Wish” trip to the Grammy’s award show in LA. My family and I got all dressed up, our hair and makeup done, and walked the red carpet! (Actually to the side of the red carpet, but still very close to the stars lol) The day before the show I was invited onto the red carpet and interviewed by ET Canada. Best part of the night was the performance by Eminem, Lil’ Wayne and Drake! We were also given tickets to Disneyland and a VIP tour of the Warner Bros. Studio lot. It was an awesome trip and I can’t think the Children’s Make-A-Wish foundation enough and all who give/support this worth while charity. 

In the fall of grade 9 (October) my cancer relapsed. I was having lower back pain which brought me into the hospital where I was told the news. I cried not out of fear for what was to come, but for the life I had to leave behind -again. I would miss the entire school year as I was constantly hospitalized for chemotherapy treatments and too weak to attend. 

When the cancer returns it has to be treated more aggressively. I would also need a bone marrow transplant to save my life. My siblings were tested but sadly not a match. The world database was checked but again, no match. To keep my cancer at bay I did chemotherapy every month while I waited for there to be a potential donor, as well as looking at other options and alternative approaches.

These were tough times for me. I tried to not make my cancer an issue and kept hanging out with my friends trying to be as normal as possible. I never wanted pity or to be treated differently. However, there were times when I was exhausted just trying to keep up with everyone. It can pretty uncomfortable wearing a hot sweaty wig at a friends sleepover in the middle of summer. Still, I just wanted to be like everybody else.

After 11 months of hard chemotherapy we received a phone call in July from St. Jude Children’s Research Hospital in Memphis Tennessee inviting us down for a consult. There I was told I had an aggressive form of leukemia and would need a bone marrow transplant immediately. The good news was they had several possible matches. So, in September I moved to Tennessee to start treatment. This was huge news considering so many people pass away while waiting for a donor match. This is something I would like to change going forward.

The first phase of receiving a bone marrow transplant is ten days of intense drugs that wipe out your immune system so the new blood cells can take over. This is followed by three days of full body radiation. To this day that had to be the hardest thing I’ve ever gone through.

On September 27th I received my gift. I endured chemo, radiation, and moving to a different country, all for a small bag of blood containing the stem cells, too tiny for the eye to see. My donor, an American man who matched me on the Bone Marrow Registry, gave me a second chance at life and I am forever grateful and thankful to him. After 30 days of resting and letting the new cells settle into my body, I was well enough to be let out of the bone marrow ward. It was incredible to go outside finally and breathe some fresh air! During transplant you are not allowed off the ward as the risk for infection is too high. For the first time I got to see our new apartment in Memphis. It is called Target House and it is free housing supplied by St. Jude Childrens Research Hospital for the patients and their families.

The first week of April I was experiencing the same lower back pain that I had once before. I was scared. I did blood work in Edmonton and the results were inconclusive. The very next day I flew back to St. Jude. A bone marrow aspiration revealed that my cancer was back again. I was in shock because I thought it was over and done with. It didn’t fully register until I looked over and saw my parents crying. I had only been home for 11 months, but would have to find the strength to tackle it once again.

The consensus was I would need a second bone marrow transplant with my own mom being my donor. This process is called a haplo-transplant. Before the transplant I would need to kill all the cancer cells. I tried an experimental chemo drug called Bortezomib. This drug was infused into me 24 hours a day for 30 days non stop. Unfortunately it only got rid of half of my cancer cells. So… on June 9th the intense chemotherapy started again.

Over time my body got used to seeing many of these cancer drugs and built an immunity to them. Therefore, I was given new and different chemo drugs and in higher doses. Some of these drugs I have already reached my lifetime limit on because they are so damaging to the body. It was the hardest chemotherapy I had ever done. And, just when feeling sick isn’t enough, complications and reactions arise such as typhilitis, C-Diff, liver and kidney problems… These complications then require their own separate treatments that also make you sick and have their own side effects. Drugs for drugs from drugs.

Even though getting cured is painful and hard, I was always thankful for it. No matter how many infections or problems I got, the doctors and nurses at St. Jude never gave up on me, and treated each problem with patience, care, and knowledge. On July 7th I was finally done with this bout of the chemotherapy protocol and tests showed my leukemia was reduced to 0.2 percent!  At this point, I was ready for the Haplo-transplant from my mom, but instead we decided to have additional treatment to get that number to 0.0%.

I immediately flew to Seattle, Washington to begin the CAR T-cell therapy at Seattle Children’s Hospital. This therapy is when a patient’s t-cells (a type of immune cell) are removed and treated in a laboratory. Here, they are engineered to produce an artificial t-cell receptor so they will attack cancer cells. I hope for the future that immunotherapy (using your own body to fight cancer) is more widely developed and used.

One week after arriving in Seattle, I started the CAR T-cell protocol. My blood went through an apheresis machine to separate my T cells. On August 16th (6 weeks later), I received my new engineered cells! I waited to see how they would react to my system. After 23 days my bone marrow aspiration results showed the cancer was completely gone! On a side note there were some hard moments doing this therapy. I had more chemotherapy to weaken my immune system, and anxiously await for the cytokine release syndrome (known as “the storm”). All in all this therapy was much easier than the long, standard chemotherapy protocols. Now.. back to St. Jude

I rang in the New Year and my birthday (January 2nd) still in the ICU.

It was my 18th birthday. I had been medically put asleep and on a ventilator in order to let my body rest and heal. After a few days I was slowly woken up.

Some special nurses made me a cake and decorated my room 🙂 this gesture will be one that always sticks with me!

In the months to come I celebrated small victories. I was able to eat solid food after several months, had no complications with my gall bladder removal, and my liver biopsy was negative for GvHD! August 1st would be the day that I returned home to Edmonton, Alberta, Canada. One year, and four months from the day I had left.

I missed many things over this time but one of them being the toughest was my High School Graduation. I would not get the chance to see many of the kids I grew up with again. Also, I wish I could have gone to a lot of my friends 18th birthday parties where they turned the legal age to drink. These are crazy memories I would never be a part of.

After my October check up at St. Jude, I went to visit my sister in Miami. I developed breathing problems and was admitted to the Miami Children’s Hospital ICU for the next 10 days. I was not improving so St. Jude sent an airplane to medivac me back to them. Over the next 3 weeks I was put on a ventilator to help my lungs rest and eventually was well enough to fly home to Edmonton.

By the end of December my breathing got worse and a lung biopsy revealed Graft Verse Host Disease. GvHD is a condition where the donor cells (my moms stem cells) view my cells as being foreign and attack them. There are many types of GvHD you can contract (eyes, skin, liver, etc). Earlier in the year it also affected my eyes

I was now starting the work up for lung transplant. After many tests and doctor visits, plus 30 straight days of physical therapy and educational classes, on June 12 I was put on the active lung transplant waitlist! I now have to be within a 4 hours drive of the hospital in case a donor becomes available. The main criteria for a match is to have the same blood type and height/size. The donor lungs have to fit into my chest cavity but can be either male or female.

September 15 – I got my call! But sadly it was a “dry run”. This can happen when the donors lungs are removed, inspected and found not suitable for transplant. It happens quite often, and was disappointing but I remained hopeful that my call will come again soon!

For the first time in 3 years I finally got to celebrate Christmas at home! A great milestone to say the least! I must say it was a tough year but I looked forward to getting my lung transplant soon and having my life back together.

All year I had been considering moving to Toronto after my lung transplant. This is where most of my relatives live. However, the transplant call didn’t seem to be happening so I asked my Edmonton, Alberta lung team if they would be able to transfer my care to the Toronto lung program. Both sides agreed it was a good idea since I would be needing a lot care afterwards. I packed up, had a going away party and on August 5th moved to Toronto, Ontario!

After doing the required tests and procedures for the Toronto General Hospital lung department, I was put on the active waitlist on September 18th! Only on the list for 2 weeks, I was shocked to get a call on October 3rd to come to the hospital as they had found me suitable lungs! But sadly, again, it would be a dry run – aka a false call.

While waiting I continued to do physical therapy 3 times a week and go to my various doctor appointments. I was still using my wheelchair to get around and adjusting to life in the city. My breathing was stable but also limited my activities. I kept hoping my phone would ring with good news.

With Christmas approaching there were many holiday activities going on in Toronto, I saw the Tree Lighting ceremonies at Eaton Centre Mall and Dundas Square, went to the Jingle Bell Ball concert, saw the UFC 231 fight and a Toronto Maple Leafs hockey game!

I looked forward to 2019, hopefully getting my lung transplant and starting my new life.

2019 – The Year Of My Lung Transplant!

I invited my cousins over to ring in the New Year and my 22nd birthday.

The first two months of the year I was having chest pain and shortness of breath which caused me to be hospitalized. An x-ray showed I had a pneumomediastinum (air bubble in my lungs).  I was also experiencing huge headaches caused by extremely elevated blood gas. My condition makes it hard to blow air out so carbon dioxide then builds up.

When I was in hospital I got my call number 3 on Feb 14! Again, it was determined the lungs weren’t in the right condition to be transplanted.

The next day I was discharged and the day after that on February 17 I got yet another call – number 4! Again, it was a no go.

It’s pretty discouraging when you get a call that doesn’t end up in transplant. But, you just have to tell yourself that those lungs weren’t the right ones, and not let it get you too down.

Then… one more time…. I got called again. Call number 5 on March 29 just before midnight. In I went. After delays and an overnight stay, I received my double lung transplant on March 30, 2019! My surgery was at 4:15pm and finished 10 hours later at 2am. The surgery was successful however my heart stopped beating after removal of my first lung. At that point I was put on ECMO (a machine that acts as a lung to pump and deliver oxygen to the blood). Pacer wires were also put on my heart to keep it beating regularly and were removed the next day. I spent 3 days in the ICU and 2 weeks in the transplant ward of the hospital. During this time I started to lose sensation on the entire right half of my body. I felt very numb and heavy, like a pins and needles sensation when your foot or leg falls asleep. The vision out of the corner of my right eye was reduced and I saw black spotty patches. An MRI revealed I suffered a 2cm blood clot (stroke) on my occipital lobe. This has been quite hard to deal with, but with any big surgery there are always complications. I am still very grateful to the skilled surgeons and team at the Toronto General Hospital.

Currently (November 12th, 2019) I am 8.5 months post transplant. My new lungs have been doing very well! Over the past few months I’ve been hospitalized multiple times for liver, gut and pancreatic problems. Bile duct stones in my liver were causing immense pain and fever so were removed during a procedure called an ERCP. I developed shingles twice in the last couple months (last time was 5 years ago). This too was extremely painful and more antibiotics were needed.

Years of steroids has taken a toll on my body. My cataracts were removed in 2017 and the Cushing syndrome (the reason why my face and stomach are puffy) stays with me to this day. I continue to have Avascular Necrosis in my knees, tailbone but my hips have really worsened over the years. I wait for a hip replacement in the future but must wait one year post transplant. It will be a huge milestone to be out of my wheelchair one day and walk without pain!

Creating this website, and looking back at my old photos and doctor reports, was at times very emotional and overwhelming. I was surprised to see how young I was before I was diagnosed, and so oblivious to what cancer was. One day I was this healthy kid that was very competitive and confident, never thinking such a thing could happen to me, and the next my world got turned upside down. I always dreamt about doing big things with my life, I never wanted to blend in or be “normal”. But with each diagnosis throughout the years, that became ALL I wanted to be. My heart aches for all the innocent kids who are sick in hospitals, wishing for a normal childhood where they could attend school, be with friends, and spend time with their families. 

I have really grown to appreciate the little things in life. While I was at St. Jude Children’s Research Hospital in Memphis Tennessee for my bone marrow transplants, even though I was at my weakest and sickest, there were many worse off than me. A few of the friends I made in the “Teen Room” or housing complex where I stayed passed away. I often think how it must have felt for them and their families waiting for each test result or piece of information only to hear their condition was declining. I too waited on test results but mine were always ok, there was always hope. I try to put myself in their shoes and that is one of the reasons why I try to be grateful for each day that I am alive. I want to live my life to the fullest to honour those who didn’t make it. 

11.5 years of cancer treatment and a lung transplant has taken a toll on my body and spirit. Everyday is physically and mentally challenging. The only way I get through is by taking things hour by hour, day by day. It’s rare to have a week off without seeing doctors or having some test or procedure. However, even though so many things have happened to me- cancer, chemotherapy, radiation, two bone marrow transplants, experimental Car T-Cell treatment, diabetes, cushing syndrome, typhilitis, C-Diff, gall bladder removal, liver, skin and lung biopsies, cataracts, AVN, shingles, central lines, lung transplant, toenail removal, pancreatitis, liver stones, a stroke and on and on, I still feel my underlying spirit is intact. I have not given up on my goal of being that happy, healthy, “eager to jump at life” kid I once was. So, I try not to lose myself in all the medical things I go through. I never want my health to define me. 

Constantly being on the move throughout the years of treatment I’ve felt very isolated and alone at times. It’s hard to build friendships/relationships when you’re not at school or in the same country/province as your friends. When conversations are about people or teachers you don’t know or things you can’t relate to, you start losing touch. I always did my best to remain “one of the gang”, but when you’re wearing a wig, not able to drink at parties, and are worrying about your next treatment, it becomes very hard. I never wanted to be treated differently or with pity but in turn I felt at times I was hiding this “double life” and didn’t get the attention or sympathy from teachers, school and some friends that I needed.

I guess what I want people to take away from this is to reach out more to a friend/classmate, family member or even a stranger dealing with medical issues and give words of encouragement or an ear to talk to. It could make a world of difference to them and I greatly appreciated anyone who did that for me especially when I didn’t ask for it. I also want to mention the fact that cancer/transplant life is NOT like what you see in the movies or TV shows. From my experience, there are no goofy nurses, or cute boy patients like Ansel Elgort making wise remarks, or people giving you free stuff. I don’t mean to speak on behalf of all cancer patients, but I found it very lonely and mainly relied on my family for company.

Even though I am still in the recovery process and will never fully be out of the woods, I do look back and think about what lessons I have learnt throughout all of this. Firstly, it would be to never take things for granted, especially your health. When that is gone, money and material possessions lose their value. Don’t get me wrong, I still like to have nice clothes and get my nails done but they aren’t as important as they used to be. The header on my website is to ‘take things day by day’. There were times when the pain and sickness was so overwhelming I didn’t think I could get through the next minute let alone months of treatment. But I did, I learnt to stay positive, never give up and cling to hope. As quickly as things could go bad, they could change just as quickly into good. I appreciate the little things in life so much more than ever now, like taking a bath without having to saran wrap my IV lines or carry an oxygen tank on my back wherever I go. Just having a ‘good day’ of feeling well is such a treat, and it is on those days that I go to the mall to shop, out to eat or a movie. 

Even when I do feel well physically, there is still mental challenges. I often struggle thinking about all time that has been lost in my life. I missed all of my school years after eighth grade and that is something I will never get back or experience again. I missed the grade 9 Euro trip that both my brother and sister attended and spoke so highly of. I missed volleyball tournaments with my team, the post graduation trip to Punta Cana and small milestones like getting your license with friends or going to the bar for the first time (the legal age is 18 in Alberta). Knowing I was missing it all was hard but even harder was witnessing it through social media. There were moments with my family that I would never get back either like my cousins wedding, both my grandparents funeral, siblings graduations and so on. I try to remind myself that for all the experiences that I missed, this journey has also allowed me to create unique memories that I wouldn’t have had otherwise. When this is all over I will try to pick up the pieces of my life where I left off, strengthen friendships and make happier memories to replace the bad ones.

I’ve also realized the respect people with disabilities deserve. After spending so much time in my wheelchair, I’ve lived through the obstacles they face everyday from maneuvering around crowded streets, cracked sidewalks, limited elevators and especially the frustration when automatic doors or wheelchair doors don’t work. I really wish the government would make it a priority to improve these small, everyday struggles for handicapped people. 

As 2019 comes to a close, I am 8 months post transplant and still on the road to recovery. I’m not sure how long it will take to feel more stable and confident in my health but that’s okay. I’m blessed to have this second, third, fourth, fifth, sixth, seventh, eighth chance at life! In order for me to be here today, sadly, someone had to pass away and graciously donate their lungs to me. I often think and pray for the donor and their family. I will never get to meet or know them, yet we are related. Because of their gift I now have another day to smile, experience, and breathe. 

To be honest, the “Year by Year” journey and this “wrap up” on the website has so many details left out or not fully explained. It’s hard to summarize the struggles and triumphs of each day without turning it into a novel! Today, when I’m asked about the future I’m always caught off guard and not really sure what to say. I have been dealing with my health for so long now I just haven’t gotten to think that far ahead yet. But one thing is for sure-  a nice long vacation would be nice! 

This bracelet company has been a way for me to look ahead into the future. Not only do I want to pay forward the profits I make to medical charities, but I also want to fix the problems I have seen in our medical system. Also, I hope I can contribute some knowledge and guidance to other patients. I would love to be able to give back to the programs and foundations that already do this like Children’s Make-A-Wish foundation,  Make-A-Wish Foundation, Gilda’s Club here in Toronto or YAC- Young Adults with Cancer, Pink Pearl Foundation to name a few.

 The way I see it is I have really given no reason for the world to save me. I’m not a president or doctor curing diseases. I was just an 11 year old girl living her life who got cancer. But for some reason, all these other people saw potential in me to save and cure me. Not because it’s their job or they “had” to but in their hearts they wanted to. Moving from place to place, hospital to hospital, no doctor or professional knew me personally yet they made it their mission to make sure I would get the chance to live. That kindness, love and compassion given to me is what I want to give back to the world in some way. I won’t be able to cure cancer or save the planet, but if I can help give hope to any one person, that they can get through whatever battle or disease they’re dealing with, it would make everything I’ve been through worth it. 

If I could get through it- so can you!  And that is what I want my bracelets to represent. Life is a journey-smooth and bumpy, twists and turns, long and short. No matter what your journey is, keep your head up, keep your spirit high, lean on others and have faith and hope. You are strong and you are special. God will help you. Everything will be ok.

 I want to thank every doctor, nurse and specialist who has had a hand in getting me better and never gave up on me. To every lab tech taking my blood each day to the room cleaners who would stop what they were doing and chat with me, I appreciate you all.

Lastly, my family for always putting me first before themselves and doing everything they possibly could to make me smile and get through another day. They have sacrificed so much of their own lives to be there for me and I am so grateful to have them. There are no words…thank you.

Hi everyone! My name is Angie Rose Lee and I am 22 years old. Over the past eleven years (2008) I have had leukemia 3 times, received 2 bone marrow transplants and just recently received a double lung transplant (March 30, 2019)! I have gone through treatment in Canada and the United States at five different hospitals. The road has been long and difficult, but today I am cancer-free and breathing with new lungs!

The purpose for selling my bracelets is to raise funds for the organizations and hospitals that have helped me along the way. I also want to create awareness about bone marrow and organ donation. The more donors we have, the more lives that can be saved. When my cancer returned in 2012, my oncologist told me I would need a bone marrow transplant. The world database was checked and there was no match for me. I had to continue chemotherapy and hope a match would come my way. This is why it is so important to be swabbed as you could be a possible match for someone and save a life. I also want to spread the word about organ donation. I waited for my lung transplant for almost 2 years. There just aren’t enough donors and so many waiting for transplants of all kinds. One donor can save up to 8 lives.

I never once thought this would happen to me. But it did. I was an active, healthy kid, and an outgoing teenager. I loved sports of all kinds – gymnastics, tennis, volleyball, tae kwon doe, and on and on. My friends and I loved the weekends and late summer nights!

I’m grateful for being here but its been a struggle to say the least. I salute all the health care professionals who treated me with kindness and respect. A big thank you to friends who stuck by me and of course.. my family 🙂

On a side note, there are many things I have left out-details about operations, procedures, medicines, feelings/emotions. So much has happened in the past 11 years that it would impossible to cover it all. I’ve kept my story as short as I can so more people can read it without being overloaded with too much information.

I’ve tried to mention the main points of my journey but if anyone has questions for me, is going through a similar experience, or just wants to say hi I am always here to talk or text!

To Read My Full Story By Year, Click the Tabs Above!

Hi everyone! My name is Angie Rose Lee and I am 22 years old. Over the past eleven years (2008) I have had leukemia 3 times, received 2 bone marrow transplants and just recently received a double lung transplant (March 30, 2019)! I have gone through treatment in Canada and the United States at five different hospitals. The road has been long and difficult, but today I am cancer-free and breathing with new lungs!

The purpose for selling my bracelets is to raise funds for the organizations and hospitals that have helped me along the way. I also want to create awareness about bone marrow and organ donation. The more donors we have, the more lives that can be saved. When my cancer returned in 2012, my oncologist told me I would need a bone marrow transplant. The world database was checked and there was no match for me. I had to continue chemotherapy and hope a match would come my way. This is why it is so important to be swabbed as you could be a possible match for someone and save a life. I also want to spread the word about organ donation. I waited for my lung transplant for almost 2 years. There just aren’t enough donors and so many waiting for transplants of all kinds. One donor can save up to 8 lives.

I never once thought this would happen to me. But it did. I was an active, healthy kid, and an outgoing teenager. I loved sports of all kinds – gymnastics, tennis, volleyball, tae kwon doe, and on and on. My friends and I loved the weekends and late summer nights!

I’m grateful for being here but its been a struggle to say the least. I salute all the health care professionals who treated me with kindness and respect. A big thank you to friends who stuck by me and of course.. my family 🙂

On a side note, there are many things I have left out-details about operations, procedures, medicines, feelings/emotions. So much has happened in the past 11 years that it would impossible to cover it all. I’ve kept my story as short as I can so more people can read it without being overloaded with too much information.

I’ve tried to mention the main points of my journey but if anyone has questions for me, is going through a similar experience, or just wants to say hi I am always here to talk or text!

To Read My Full Story by Year, Click the Tabs Above!

Hi everyone! My name is Angie Rose Lee and I am 22 years old. Over the past eleven years (2008) I have had leukemia 3 times, received 2 bone marrow transplants and just recently received a double lung transplant (March 30, 2019)! I have gone through treatment in Canada and the United States at five different hospitals. The road has been long and difficult, but today I am cancer-free and breathing with new lungs!

The purpose for selling my bracelets is to raise funds for the organizations and hospitals that have helped me along the way. I also want to create awareness about bone marrow and organ donation. The more donors we have, the more lives that can be saved. When my cancer returned in 2012, my oncologist told me I would need a bone marrow transplant. The world database was checked and there was no match for me. I had to continue chemotherapy and hope a match would come my way. This is why it is so important to be swabbed as you could be a possible match for someone and save a life. I also want to spread the word about organ donation. I waited for my lung transplant for almost 2 years. There just aren’t enough donors and so many waiting for transplants of all kinds. One donor can save up to 8 lives.

I never once thought this would happen to me. But it did. I was an active, healthy kid, and an outgoing teenager. I loved sports of all kinds – gymnastics, tennis, volleyball, tae kwon doe, and on and on. My friends and I loved the weekends and late summer nights!

I’m grateful for being here but its been a struggle to say the least. I salute all the health care professionals who treated me with kindness and respect. A big thank you to friends who stuck by me and of course.. my family 🙂

On a side note, there are many things I have left out-details about operations, procedures, medicines, feelings/emotions. So much has happened in the past 11 years that it would impossible to cover it all. I’ve kept my story as short as I can so more people can read it without being overloaded with too much information.

I’ve tried to mention the main points of my journey but if anyone has questions for me, is going through a similar experience, or just wants to say hi I am always here to talk or text!

To Read My Full Story by Year, Click the Tabs Above!

Hi everyone! My name is Angie Rose Lee and I am 22 years old. Over the past eleven years (2008) I have had leukemia 3 times, received 2 bone marrow transplants and just recently received a double lung transplant (March 30, 2019)! I have gone through treatment in Canada and the United States at five different hospitals. The road has been long and difficult, but today I am cancer-free and breathing with new lungs!

The purpose for selling my bracelets is to raise funds for the organizations and hospitals that have helped me along the way. I also want to create awareness about bone marrow and organ donation. The more donors we have, the more lives that can be saved. When my cancer returned in 2012, my oncologist told me I would need a bone marrow transplant. The world database was checked and there was no match for me. I had to continue chemotherapy and hope a match would come my way. This is why it is so important to be swabbed as you could be a possible match for someone and save a life. I also want to spread the word about organ donation. I waited for my lung transplant for almost 2 years. There just aren’t enough donors and so many waiting for transplants of all kinds. One donor can save up to 8 lives.

I never once thought this would happen to me. But it did. I was an active, healthy kid, and an outgoing teenager. I loved sports of all kinds – gymnastics, tennis, volleyball, tae kwon doe, and on and on. My friends and I loved the weekends and late summer nights!

I’m grateful for being here but its been a struggle to say the least. I salute all the health care professionals who treated me with kindness and respect. A big thank you to friends who stuck by me and of course.. my family 🙂

On a side note, there are many things I have left out-details about operations, procedures, medicines, feelings/emotions. So much has happened in the past 11 years that it would impossible to cover it all. I’ve kept my story as short as I can so more people can read it without being overloaded with too much information.

I’ve tried to mention the main points of my journey but if anyone has questions for me, is going through a similar experience, or just wants to say hi I am always here to talk or text!

To Read My Full Story by Year, Click the Tabs Above!

A
Acid Reflux
Acute Lymphoblastic Leukemia
Acute Radiation Sickness
Avascular Necrosis
Anesthesia
Apheresis line
Acupuncture
Acupressure
Audiology testing
AVN-knees, hips, elbows, fingers, lower back
Adnovirus
Abdominal Ultrasound
Allogenic Stem Cell Transplant
B
Bile Reflux
Baldness
Bone Marrow Transplantation
Bone Marrow Aspiration
Biopsy-skin, liver, lungs
Broviac/Hickman central venous line
Blood Transfusion
Bone Density Test
Bone Scan
Bronchoscopy
Blepharoplasty
Bladder Infection
Blood Clot
Blood Pressure Test
Blood Gas Tests
Botox Injection- Migraines
Bilirubin Test
Bortezomib
C
C-Difficile Colitis
Cancer
Cataracts
Chemo Brain- Post Chemotherapy Cognitive Impairment
C – Continued
Conjunctivitus
Constipation
Cushing Syndrome
Cytomegalovirus (CMV)
C-Difficile Colitis (C-Diff)
Colonoscopy
Chemotherapy
Chest X-Rays
Complete Blood Count (CBC)
Computerized Tomography (CT Scan)
Catheter
Cystitis
Cuvitru-Immune Globulin Subcutaneous Human
Cholecystectomy- gall bladder removal
Cholecystitis- gall bladder inflammation
Cortisone Injections
Cancer Treatments
Cataracts
Coronavirus-HKV1
C-Reactive Protein Test
Creatinine Test
D
Deep Vein Thrombosis
Diabetes
Duodenitis
Dexa Scan
Depression
Dry Eyes
E
ECG-Electrocardiogram
Endoscopy
EBV
F
Functional Neurological Disorder
Feeding Tube
Fungal Lung Infection
G
Gastroscopy
Gastritis
Gastric Emptying Study
Genetic Testing
Gallstones
Gastrparesis-GERD
H
HHV6
Hallucinations
Hypertension
HbA1c test
Hematocrit test
Hemoglobin test
HIDA Scan
Helicobacter pylori (H-pylori)
Hand-Foot-and-Mouth Disease
I
Interstitial Lung Disease
I-Vad Central Line
ICU
Ibunerol treatments
IVIG
Influenza A,B
Immunotherapy for Cancer
Ingrown Toenail Removal (‘chemo nails’)
J
K
L
Leukemia- Acute Lymphoblastic Leukemia
Lumbar Puncture
Liver Function Tests
Lung Transplant
M
MRI-Magnetis Resonance Imaging
Medi-Vac
Mouth Sores-Blisters
Mycrobacterium
Migraines
MRSA- Methicillin-resistant staphylococcus aureus infection
N
Neuropathy- hand and foot, peripheral
Nasal Wash
Nightmare Disorder
O
Orthodontics
P
Pancreatitis
Pneumonia
Pneumothorax- Collapsed lung
PSC-Primary Sclerosing Cholangitis of liver
Pancreatic pseudocyst
Platelets
Physical Therapy
Pulmonary Function Test
Pick Line
Pneumomediastinum
Psychiatry
Psychology
Pap test
Q
Qt Syndrome- prolonged
R
Radiation
Rotovirus
S
Shingles (Zoster)
Strept Throat
Salmonella Infection
Steroid Injections
Spirometer
T
Tachycardia
Thrush,Oral
Tinnitus
Typhilitus
TPN
T.B. Skin Test
T.E.N.S.
U
Ultrasound- heart, liver, lung, abdominal, pelivis…
V
VQ Lung Scan
VRE- Vancomycin-Resistant Enterococci
W
X
X-Ray
Y
Z

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